In June 2024, just three weeks before I was due to finish my nursing degree, I received a life-changing diagnosis: a low-grade brain tumour. At the time, I was juggling clinical placements, coursework, and plans for my future in nursing. But looking back, the signs were there. I had been suffering from intense headaches andContinue reading “The Day I Became Both Nurse and Patient”
Author Archives: Sara C
Why ‘Benign’ Is Harming the Brain Tumour Community
At The Beyond Recovery Project, we support many individuals living with the long-term effects of brain tumours that are medically labelled as benign. But we believe it’s time to challenge that term—because it’s not only misleading, it’s harmful. The word benign suggests something harmless. Something that doesn’t need to be taken seriously. But when aContinue reading “Why ‘Benign’ Is Harming the Brain Tumour Community”
Neuro Nutrition – Eating for brain health#2
Key to my recovery journey and new normal is following a healthy brain diet, so over a series of nutritional articles, I will be sharing advice and guidance, as well as recipes that include all the ingredients needed to help minimise brain fog and neuro fatigue. They will also help maximise your brain health –Continue reading “Neuro Nutrition – Eating for brain health#2”
My Brain Tumour Journey… Nick’s Story
My brain tumour journey, probably similarly to many others, didn’t begin the day my brain tumour became a known reality. My journey began in my early teens, when it is believed my tumour, an Acoustic Neuroma developed and started it’s slow growth. This was unbeknown to me of course, as I didn’t have any symptomsContinue reading “My Brain Tumour Journey… Nick’s Story”
Neuro Nutrition – Eating for Brain Health #1
By Amanda Connor | BSc Dietetics The key to my recovery journey and new normal has been following a healthy brain diet, so I will be sharing some guidance and recipes over a series of articles on foods to include and those to avoid, which helps to minimise brain fog and neuro fatigue and toContinue reading “Neuro Nutrition – Eating for Brain Health #1”
Because I Can… Louise’s Story
After having flashes of blurred vision and increasing headaches in the evenings after work, I thought I might need glasses and went for a routine eye test. The opticians referred me for an MRI after tests showed my visual field on the right-hand side was severely limited. A few days later, I sat back upContinue reading “Because I Can… Louise’s Story”
From Everest to the Sahara: A Journey of Strength, Resilience, and New Beginnings
In January 2016, I married the love of my life. My heart was full, and our wedding day was nothing short of magical. But it wasn’t long before life took us on an adventure that would test my limits, challenge my strength, and redefine who I am. In January 2017, on our first wedding anniversary,Continue reading “From Everest to the Sahara: A Journey of Strength, Resilience, and New Beginnings”
Carl’s Story
I had been having worsening issues with the hearing in my right ear, including tinnitus, hearing loss and sound sensitivity (hyperacusis) over a number of years, with many health professionals telling me it was a just recurring ear infection; little did I know how wrong they were. It’s July 2020, and following a sudden andContinue reading “Carl’s Story”
Beyond Brian and Recovery – Amanda’s Story
Our individual post brain surgery journey is not only about our physical recovery but also regaining our mental balance, wellbeing, and self-confidence – as well as adjusting to our new normal daily. “In November 2017, I was diagnosed with an Acoustic Neuroma +25mm pressing on the left-hand side of my brainstem, which I named “BrianContinue reading “Beyond Brian and Recovery – Amanda’s Story”
Benign Is Not Fine – Laura’s Story
I was diagnosed with a large Vestibular Schwannoma brain tumour in September 2023. I’d had many years of symptoms including numbness of my face, balance issues and vertigo. For almost 3 years I went to doctors, yet my symptoms were ignored and I was told it was mental health related. It was my dentist whoContinue reading “Benign Is Not Fine – Laura’s Story”
The Beyond Recovery Project CIC 